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Your journey to Alpha-1 diagnosis

You don’t have to wait to get answers and move forward

How long does it take to get an Alpha-1 diagnosis?

Scientists have studied the ways that patients with Alpha-1 are screened and diagnosed. One study reported that it took almost 8 years for many patients to get an accurate diagnosis of Alpha-1. This study also showed that some of these patients were seen by an average of 3 doctors before they were evaluated by a doctor who diagnosed them with Alpha-1.9

Today, with more understanding and advanced testing, you do not have to wait to know if you have Alpha-1.

Here are some tips to help rule out an Alpha-1 diagnosis:

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Why is it important to get an Alpha-1 diagnosis as soon as possible?

  • Finding out that you have Alpha-1 will help your doctor recommend appropriate treatment to improve your lung health
  • Alpha-1 is a progressive disease. Without treatment, Alpha-1 can get worse over time. It can also cause other serious lung diseases, such as COPD and emphysema. In some cases, Alpha-1 can also cause liver disease1
Your Alpha-1 journey starts with you and your doctor. Talk to your doctor about Alpha-1.
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Screening

You and your doctor will talk about your risk for Alpha-1. If you have a family history of Alpha-1, COPD, emphysema, irreversible asthma, unexplained liver disease, or a skin disorder called necrotizing panniculitis, you should be tested for Alpha-1.

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Free testing

If you are at risk for Alpha-1, you will be given a simple blood test to confirm your diagnosis. Remember, only a blood test can confirm Alpha-1. Talk to your doctor about FREE testing.

DNA1 Advanced Alpha-1 Screening™ offers simple, convenient, and accurate testing and requires only 1 test for diagnosis. Other tests may require more than 1 test to get an accurate diagnosis.

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Diagnosis

If you are tested with a DNA1 Advanced Alpha-1 Screening Test Kit, your doctor will get your Alpha-1 test results back from the lab within a week (10-14 days if a confirmation test is needed).

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Appropriate treatment

If you are diagnosed with Alpha-1, your doctor will talk to you about appropriate treatment that can help you improve your lung health.

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Alpha-1 is a progressive disease, which means if it is left undiagnosed and untreated, it can get worse and may do more harm to your lungs and body over time.

Quick questions to ask yourself and your doctor about Alpha-1

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Take the Alpha-1 risk quiz

Your Alpha-1 journey continues over a lifetime of care and community

Alpha-1 is a lifelong journey, but it’s important to remember that you do not have to go it alone. There will always be support from others to help you live your best life with Alpha-1.



With DNA1 Advanced Alpha-1 Screening, there is typically no need to retest

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Question 2

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Question 3

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Question 4

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Question 5

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Results

YOUR SCORE:

You have a LOW score. Continue to follow your doctor's instructions regarding any symptoms you may be experiencing. If your symptoms linger or worsen, you may want to consider getting tested for Alpha‑1. Print your assessment result and keep it on hand for future reference.

You have a MEDIUM score. Talk with your doctor about this evaluation to discuss the need for testing for Alpha‑1. Print this results page and bring it with you to your doctor's office for discussion.

REMEMBER: Not all genetically predisposed individuals will develop clinically significant symptoms. Your doctor can conduct tests to determine if you have Alpha‑1.

You have a HIGH score. Talk with your doctor about this assessment to discuss the need for testing yourself and your family members for Alpha‑1. Remember to print your assessment result and bring it with you to your doctor’s office.

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